A very confused place to be

Last week one of BBGs workers said we should apply to a charity that maybe able to help us. She had never heard of them turn anyone down and thought BBG would be a perfect case. We needed a few things for her sensory equipment but also potentially going privately for a couple of pieces…

Test of parenting

This past 7 days has been a massive test of parenting! BBG collapsed in an episode on Sunday while outside on the patio. Sadly she fell wrong. Dad made her move her arm, watched as she played and saw that she was able to play and move her arm and hand ok. He put her…

Parenting is so hard

Parenting is so hard! Everyone always says it is, but they give you the silver lining, rose tinted glasses version of parenting. The “your baby will poo so much it explodes everywhere but they smile and make it also seem to disappear”. Or they will talk about the toddler tantrums and then by the end…

Autism where are we at?

This week we had a One Plan meeting for our amazing MO. His old SENco (Special Educational Needs Coordinator) at his school left last term and Dad was introduced to his new SENco. I couldn’t go unfortunately as I was at home having an appointment for BBG.   It was a really productive meeting apparently….

Your child really is ill

The other week I was talking to another Mum who has a child with additional needs and was talking about our appointment schedules, about what teams come into the house, and about how fast the waiting list seems to be going for us. I also explained a little about the test results for Great Ormond…

To be a sibling

I asked my daughter what it was like to be the eldest sibling of a brother with autism and a sister with an undiagnosed condition. Her reply is below and it broke my heart; I love my sister and my brother but I don’t like being their sibling sometimes. I don’t like having to do…

Test results are sort of in

This morning started as any other morning. Had our specialist health visitor come round and talk about what’s happened; how BBG has developed, if there is any more support we can get, and to go through new reports and what has happened in appointments. We left on the usual statement of if/when we get a…