Parenting is so hard

Parenting is so hard! Everyone always says it is, but they give you the silver lining, rose tinted glasses version of parenting. The “your baby will poo so much it explodes everywhere but they smile and make it also seem to disappear”. Or they will talk about the toddler tantrums and then by the end…

Autism where are we at?

This week we had a One Plan meeting for our amazing MO. His old SENco (Special Educational Needs Coordinator) at his school left last term and Dad was introduced to his new SENco. I couldn’t go unfortunately as I was at home having an appointment for BBG.   It was a really productive meeting apparently….

Your child really is ill

The other week I was talking to another Mum who has a child with additional needs and was talking about our appointment schedules, about what teams come into the house, and about how fast the waiting list seems to be going for us. I also explained a little about the test results for Great Ormond…

To be a sibling

I asked my daughter what it was like to be the eldest sibling of a brother with autism and a sister with an undiagnosed condition. Her reply is below and it broke my heart; I love my sister and my brother but I don’t like being their sibling sometimes. I don’t like having to do…

Test results are sort of in

This morning started as any other morning. Had our specialist health visitor come round and talk about what’s happened; how BBG has developed, if there is any more support we can get, and to go through new reports and what has happened in appointments. We left on the usual statement of if/when we get a…

5 minutes of normality

I went to a birthday party with our girl the other week and it was the first time I had really been in a position where people weren’t truly aware of her condition. I had never met any of the other parents or children and so I made the decision not to talk to people…

Stressful times!

How much stress can I person take! I always thought that I could deal with stress well. My previous jobs had always been stressful and yet I seemed to be able to switch off when I left the office. I have moved internationally with 3 children, one being only a few months old, and yet…

Emotions

I never realised how much we took knowing our emotions for granted. I can’t remember learning emotions, I can’t remember having to figure out what emotions suit what situation. If someone fell over, I knew that it was sad. If someone was being nice to me I knew to be happy.  MO however doesn’t know…

Mental relaxation

Today marks 1 week since I left the UK to go visit my family and my best friend down under with no kids, no husband… just me! I love this picture of this sculpture. It is showing that home is in your heart everywhere you go. A lot of people were confused and said they…

Mothers Day

Mother’s Day, one Sunday a year when us Mum’s are spoilt with tea, food and cards (home made or shop bought). When was the last time we told our Mum “I love you”. Do you tell her everyday via text, call or in person, or do you only say it on special occasions or even…

World Book Day with Pizza Express

So another year has passed and another World Book day has arrived!   This is one day that the children love to get involved in. Our book corner is huge and in fact is the most used area of the house. BG happily curls up and reads books to her brothers and sister and I…

Special Ed vs mainstream

This past few weeks we have been inundated with assessments for support and for different services that are in our new area.   As BBG is now 18 months we are now understanding a little bit more about her condition. We are understanding that her communication is very limited, we are understanding that her understanding…