Your child really is ill

The other week I was talking to another Mum who has a child with additional needs and was talking about our appointment schedules, about what teams come into the house, and about how fast the waiting list seems to be going for us. I also explained a little about the test results for Great Ormond…

To be a sibling

I asked my daughter what it was like to be the eldest sibling of a brother with autism and a sister with an undiagnosed condition. Her reply is below and it broke my heart; I love my sister and my brother but I don’t like being their sibling sometimes. I don’t like having to do…

Test results are sort of in

This morning started as any other morning. Had our specialist health visitor come round and talk about what’s happened; how BBG has developed, if there is any more support we can get, and to go through new reports and what has happened in appointments. We left on the usual statement of if/when we get a…

5 minutes of normality

I went to a birthday party with our girl the other week and it was the first time I had really been in a position where people weren’t truly aware of her condition. I had never met any of the other parents or children and so I made the decision not to talk to people…

Stressful times!

How much stress can I person take! I always thought that I could deal with stress well. My previous jobs had always been stressful and yet I seemed to be able to switch off when I left the office. I have moved internationally with 3 children, one being only a few months old, and yet…

Emotions

I never realised how much we took knowing our emotions for granted. I can’t remember learning emotions, I can’t remember having to figure out what emotions suit what situation. If someone fell over, I knew that it was sad. If someone was being nice to me I knew to be happy.  MO however doesn’t know…

Mental relaxation

Today marks 1 week since I left the UK to go visit my family and my best friend down under with no kids, no husband… just me! I love this picture of this sculpture. It is showing that home is in your heart everywhere you go. A lot of people were confused and said they…