When all your strength has disappeared

This last month or so has been crazy. We’ve had the summer holidays which I am sure most of you will agree with me saying, that although I love seeing my kids and being with my kids for the 6 weeks, they need routine and school. Just everything goes a little off the wall regarding…

When enough is enough

As I approach BBGs 2nd birthday, a milestone I thought I’d never see, I was looking back at what tests and procedures she has endured over the last year, and it got me thinking: when do you say “no more”? To me my beautiful daughter is living on bonus time anyway, she is doing things…

So much has happened

It seems like I haven’t written a blog for years and so I thought I would update you guys as to why. Unfortunately, my husband and I have decided to separate, this has changed the family dynamic quite a bit and turned my already chaotic life upside down. We quickly learnt that the separation was…

Test of parenting

This past 7 days has been a massive test of parenting! BBG collapsed in an episode on Sunday while outside on the patio. Sadly she fell wrong. Dad made her move her arm, watched as she played and saw that she was able to play and move her arm and hand ok. He put her…

Parenting is so hard

Parenting is so hard! Everyone always says it is, but they give you the silver lining, rose tinted glasses version of parenting. The “your baby will poo so much it explodes everywhere but they smile and make it also seem to disappear”. Or they will talk about the toddler tantrums and then by the end…

To be a sibling

I asked my daughter what it was like to be the eldest sibling of a brother with autism and a sister with an undiagnosed condition. Her reply is below and it broke my heart; I love my sister and my brother but I don’t like being their sibling sometimes. I don’t like having to do…

Test results are sort of in

This morning started as any other morning. Had our specialist health visitor come round and talk about what’s happened; how BBG has developed, if there is any more support we can get, and to go through new reports and what has happened in appointments. We left on the usual statement of if/when we get a…