When all your strength has disappeared

This last month or so has been crazy. We’ve had the summer holidays which I am sure most of you will agree with me saying, that although I love seeing my kids and being with my kids for the 6 weeks, they need routine and school. Just everything goes a little off the wall regarding…

Parenting is so hard

Parenting is so hard! Everyone always says it is, but they give you the silver lining, rose tinted glasses version of parenting. The “your baby will poo so much it explodes everywhere but they smile and make it also seem to disappear”. Or they will talk about the toddler tantrums and then by the end…

Christmas Time!

Last Christmas was BBGs first Christmas time. We were so excited to celebrate as a family of 6, I’d brought a different outfit and pj set for each day of the week of Christmas back in early November. I had excitedly brought Christmas presents all the way back in September/October. Then our world changed. We…

Can we really have it all?

I’ve been thinking about whether we can really have it all.   Can we really; be a parent have a career have a good relationship with the partner have a social life have hobbies     Are there enough hours in the day/week/month/year?   Do we have enough energy to at the end of the…

An Unexpected Adventure to Hospital

This morning my alarm woke me up at 6.30. I stretched my arms and legs and dragged myself into BBGs nursery. She had slept through the night and for anyone who breast feeds you will understand the ache I was feeling, plus BBG never sleeps through the night.  Bleary eyed I bent down and scooped…

I hate this unknown 

I feel awful writing this… I hate my daughters condition. It has robbed me of her first year, her first year is meant to be exciting and yet for a year I have been worried senseless.  I feel robbed of her future!  Will she just need a tablet? Probably not!  Will she grow old and…

Getting close to an answer?

This last week we have had a big old report back from GOSH detailing their findings from the neuro muscular team; we still haven’t had the results back from our long old stay up there but that’s under the neurology team.  It said everything we knew before, she’s globally delayed, she has fluctuating skills, kidney…