Getting close to an answer?

This last week we have had a big old report back from GOSH detailing their findings from the neuro muscular team; we still haven’t had the results back from our long old stay up there but that’s under the neurology team.  It said everything we knew before, she’s globally delayed, she has fluctuating skills, kidney…

A letter to myself in 10 years time

I’ve seen a lot of letters that are addressed to yourself 10 years ago but I was thinking about the future so I decided I would write a letter to myself in 10 years time! To 37 year old me, I am writing this and I don’t know what has happened in this last decade….

What I wish I’d known about holidaying with kids

I get that being on holiday we should be extremely excited to spend quality time with the children, that we are lucky that we could even go on holiday. I am so very grateful for the holiday and the different scenery do not get me wrong, however here are a few points I wish people…

Marsh Farm &Paw Patrol

Sunday we decided to venture down to Marsh Farm. On arrival you enter a good sized car park, this has plenty of disabled bays and a big overflow car park which stewards will direct you too. Considering we were in the overflow car park, we went straight to a lovely server who gave us our…

Broken arm and broken sleep

So this week has been quite a good week all round we have had a few blips but what’s life without a few blips 🙂 BBG has now pretty much perfected rolling 🙂 she still has to think carefully and only 5% of the time gets to where she wants to be but still she…